News & Media

Whether you’re a supporter, patient, family member, volunteer, researcher or journalist, we welcome your interest in our work.

Latest News & Announcements

Stay informed about National MSA Research and our activities across Australia.

This section will feature approved organisational announcements, community updates, awareness initiatives and other relevant news.

Articles will be published as information becomes available and is authorised for public release.

MSA Awareness

Multiple System Atrophy is a rare and progressive neurological condition that affects individuals and families around the world.

Despite its significant impact, awareness of MSA remains limited.

National MSA Research works to increase public understanding through educational information, community engagement and awareness campaigns.

Our awareness activities include participation in MSA Awareness Month each March, helping bring greater attention to the condition and the experiences of those affected.

We encourage supporters to share reliable information and help make MSA more widely recognised.

Research News

Scientific research is essential to improving understanding of Multiple System Atrophy.

Researchers around the world continue to investigate the biological processes associated with MSA, potential diagnostic methods and new treatment approaches.

National MSA Research aims to share appropriate research-related announcements and developments that may be of interest to our community.

Research findings will be presented with appropriate context, distinguishing preliminary evidence from clinically established treatments.

We will not represent experimental therapies as proven or suggest that a study has been funded or conducted by National MSA Research unless that involvement has been confirmed.

Fundraising & Community Events

Our fundraising events and community initiatives provide opportunities for supporters to come together, raise awareness and contribute towards our charitable mission.

Through events, volunteering, sponsorship and community participation, we aim to build stronger connections among people who care about the future of MSA research.

Our news updates may feature event announcements, community achievements and highlights from approved activities.

Event registration, ticket purchases and specific event information will be available through the relevant event pages.

People & Partnerships

National MSA Research is supported by volunteers, advisors, community groups, businesses and individuals who share our commitment to improving awareness of MSA.

We value the contributions of those who dedicate their time, expertise and resources towards our mission.

Where appropriate, we may share announcements about appointments, partnerships, community recognition and other organisational developments.

Personal profiles, photographs and partnership details will only be published with appropriate approval or permission.

Media Enquiries

National MSA Research welcomes appropriate enquiries from journalists, media organisations and content creators interested in learning more about Multiple System Atrophy and our charitable activities.

Media enquiries may relate to:

• General information about National MSA Research.
• MSA awareness and educational initiatives.
• Fundraising events and community activities.
• Organisational announcements.
• Approved interviews with representatives.
• Information about publicly announced partnerships.
• Research-related statements that have been authorised for release.

We will refer specialist medical questions to appropriately qualified professionals where possible.

Requests for interviews, official statements or use of organisational materials are subject to availability and approval.

Media Resources

National MSA Research may make selected resources available to journalists and approved community partners.

These may include organisational information, approved logos, photographs, awareness materials and media statements.

All materials remain subject to applicable copyright, privacy and usage requirements.

Please contact our organisation before reproducing photographs, personal stories or materials that have not been expressly authorised for public reuse.

Sharing Personal Stories

Personal experiences can help others understand the human impact of Multiple System Atrophy.

We recognise the importance of telling these stories respectfully and accurately.

When sharing the experiences of patients, families, carers or volunteers, National MSA Research will consider appropriate consent, privacy and publication permissions.

We respect each individual’s choice about whether and how their story is shared.

Our Newsletters

National MSA Research also communicates with supporters through newsletters.

Our newsletters may include organisational updates, upcoming activities, awareness information and news about our charitable mission.

Visitors interested in receiving regular updates can subscribe through our Newsletter page.

Stay Connected

There are many ways to stay informed and support National MSA Research.

You can follow our approved social media channels, subscribe to organisational updates, attend community events or help share reliable information about Multiple System Atrophy.

Every conversation helps increase awareness of a condition that deserves greater recognition.

Contact Our Media Team

For general news, publicity, interview requests or media enquiries, please contact National MSA Research.

Please include your name, organisation, contact details, enquiry topic and any relevant publication deadline.

National MSA Research
Rare Neurological Disease Research Ltd
ABN: 55 681 229 032

Email: info@nationalmsaresearch.org.au
Website: www.nationalmsaresearch.org.au

Combatting MSA Together — Through Awareness, Information and Community Connection.