Financial Information
Transparency, Accountability and Responsible Management of Charitable Funds.
At National MSA Research, we recognise that every donation represents trust in our organisation and its mission.
We are committed to the responsible management of charitable funds and to maintaining appropriate financial oversight as we work towards raising awareness of Multiple System Atrophy (MSA), supporting scientific research and encouraging progress towards more effective treatments and a cure.
Our supporters deserve accurate information about the organisation they choose to support.
About Our Organisation
National MSA Research is the registered business name of Rare Neurological Disease Research Ltd.
We are an Australian registered charity with Deductible Gift Recipient (DGR) endorsement.
Legal entity: Rare Neurological Disease Research Ltd
Trading name: National MSA Research
ABN: 55 681 229 032
ACN: 681 229 032
Our charitable objectives include raising awareness of Multiple System Atrophy, improving understanding of the condition and supporting appropriate scientific research.
How We Receive Funding
National MSA Research relies on the generosity of individuals, families, businesses and community organisations.
Our charitable income may come from several sources.
Donations
One-off and recurring donations help support the organisation’s charitable mission.
Community Fundraising
Individuals and community groups can organise approved fundraising activities to raise awareness and contribute funds.
Fundraising Events
Events such as trivia nights, gala functions and community activities provide opportunities to raise funds while bringing supporters together.
Corporate Sponsorship
Businesses may support National MSA Research through sponsorship agreements, charitable contributions and approved partnerships.
Legacy Funds
Dedicated Legacy Funds provide opportunities to honour people affected by MSA while contributing towards the organisation’s charitable objectives.
Applicable fund conditions and donor restrictions are considered when allocating contributions.
How Charitable Funds Are Used
National MSA Research’s charitable resources are intended to support activities consistent with its governing objectives.
Depending on applicable restrictions, available resources and organisational approvals, expenditure may include:
Research Support
Approved scientific research initiatives, grants, collaborations or other activities that advance the understanding of Multiple System Atrophy.
Awareness and Education
Educational materials, public awareness activities and information intended to improve understanding of MSA.
Fundraising Activities
Reasonable costs associated with organising and delivering approved fundraising events and campaigns.
Organisational Operations
Necessary administrative and operating expenses that enable the charity to function responsibly, maintain appropriate records and deliver its charitable activities.
All expenditure must be considered in accordance with applicable organisational procedures, charitable obligations and approved budgets.
Understanding Fundraising Income
The amount raised through a fundraising activity is not necessarily the same as the amount remaining after expenses.
For example, an event may involve venue costs, catering, equipment, payment processing fees or other necessary expenses.
When financial results are reported, National MSA Research aims to distinguish between:
- Gross income: Total revenue received before expenses.
- Direct expenses: Costs attributable to the relevant activity.
- Net proceeds: Funds remaining after the applicable expenses have been deducted.
- Research allocations: Amounts formally allocated or committed to approved research purposes.
- Research payments: Funds actually paid to approved research recipients.
This distinction helps ensure that fundraising achievements and research expenditure are communicated accurately.
Donations to Specific Funds and Campaigns
Some donors choose to contribute to a particular Legacy Fund, fundraising campaign or charitable initiative.
Where donations are accepted for a specific purpose, National MSA Research will consider the applicable terms, donor restrictions and legal obligations when managing those contributions.
Funds will not automatically be treated as general donations where binding restrictions apply.
Any public reporting of fund balances or campaign totals will be based on verified financial records.
Tax-Deductible Donations
Rare Neurological Disease Research Ltd is endorsed as a Deductible Gift Recipient.
Eligible donations may be tax deductible under Australian taxation law.
Whether an individual contribution qualifies depends on the nature of the payment and applicable Australian Taxation Office requirements.
Payments made in exchange for goods or services, including ordinary event tickets, raffle tickets and auction purchases, are generally not tax-deductible gifts.
Donors should seek independent taxation advice if they are uncertain about their individual circumstances.
Donation Receipts and Records
National MSA Research aims to provide appropriate acknowledgements and receipts for eligible donations.
Receipts may be issued electronically, depending on the payment method and available donor information.
Supporters who require assistance with a donation receipt or transaction record can contact our organisation.
We recognise the importance of maintaining accurate records for financial accountability and donor enquiries.
Financial Governance and Oversight
The Board of Directors is responsible for overseeing National MSA Research’s financial affairs and ensuring that charitable resources are managed responsibly.
Financial governance includes appropriate recordkeeping, expenditure oversight, management of conflicts of interest and compliance with applicable legal and reporting requirements.
The organisation aims to maintain suitable processes for recording transactions, identifying fund allocations and supporting financial reporting.
Financial information published on this website will be subject to appropriate verification and approval.
Annual Financial Reporting
As a registered Australian charity, National MSA Research is subject to applicable reporting requirements administered by the Australian Charities and Not-for-profits Commission (ACNC).
These include the Annual Information Statement and any additional financial reporting obligations that apply to the organisation.
The ACNC Charity Register provides public access to certain lodged information about registered charities.
Where appropriate, National MSA Research will also publish approved annual reports and financial information through its website.
Our Commitment to Transparency
We want supporters to understand how National MSA Research pursues its charitable objectives.
As our organisation develops, we aim to make approved financial information accessible and understandable.
This may include summaries of fundraising activities, expenditure, available charitable funds and approved research commitments.
We will not publish unverified balances, estimated research contributions presented as actual expenditure or unsupported claims about fundraising efficiency.
Financial Information and Enquiries
If you have a question about a donation, fundraising contribution, receipt or publicly available financial information, please contact National MSA Research.
National MSA Research
Rare Neurological Disease Research Ltd
ABN: 55 681 229 032
ACN: 681 229 032
Email: info@nationalmsaresearch.org.au
Website: www.nationalmsaresearch.org.au
Combatting MSA Together — Through Responsible Stewardship, Transparency and Community Support.