Frequently Asked Questions

What is Multiple System Atrophy (MSA)?

Multiple System Atrophy is a rare and progressive neurological condition that affects several systems within the body.

It can affect movement, balance, coordination, speech, swallowing and automatic bodily functions such as blood pressure and bladder control.

MSA can present differently from person to person, and symptoms may change over time.

Is MSA the same as Parkinson’s disease?

No. Multiple System Atrophy and Parkinson’s disease are different neurological conditions, although they can share certain symptoms.

Both conditions may cause movement difficulties, stiffness and slowness.

MSA can also cause prominent problems with functions controlled by the autonomic nervous system.

The similarities between these conditions can make diagnosis challenging, particularly in the early stages.

Is MSA the same as multiple sclerosis (MS)?

No. Multiple System Atrophy (MSA) and multiple sclerosis (MS) are different conditions.

Although their names are sometimes confused, they have different underlying disease processes and require different approaches to diagnosis and care.

What are the symptoms of MSA?

Symptoms vary between individuals but may include:

• Balance and coordination difficulties.
• Muscle stiffness and slowed movement.
• Dizziness or fainting when standing.
• Bladder and bowel difficulties.
• Changes in speech or swallowing.
• Sleep and breathing-related problems.

These symptoms can also occur in other conditions.

Anyone experiencing concerning or unexplained symptoms should seek medical advice.

How is MSA diagnosed?

MSA is generally diagnosed through specialist medical assessment, including a review of symptoms, medical history, neurological examination and relevant investigations.

A neurologist may recommend tests to help assess symptoms and exclude other possible conditions.

Diagnosing MSA can be difficult, especially early in the condition.

Is there a cure for MSA?

There is currently no cure for Multiple System Atrophy, and no established treatment that stops its progression.

However, treatments, therapies and supportive care can help manage certain symptoms and address individual needs.

Research continues into the causes of MSA, improved diagnosis and potential treatments.

Is Multiple System Atrophy hereditary?

Most cases of Multiple System Atrophy occur without a clear family history, and the condition is not generally considered to be directly inherited.

Researchers continue to investigate possible genetic and environmental factors.

Individuals with concerns about family history should discuss them with a qualified healthcare professional.

Does National MSA Research provide medical advice?

No. National MSA Research is a charitable organisation focused on raising awareness and supporting research.

We do not provide individual medical diagnoses, prescriptions or treatment recommendations.

Medical concerns should be discussed with a GP, neurologist or other appropriately qualified healthcare professional.

Where can I find support after an MSA diagnosis?

Our website includes information and resources intended to help individuals and families understand MSA and identify support options.

The Patient & Family Toolkit and Australian Support Services sections provide general information about practical resources, medical appointments, care planning and external support organisations.

Your healthcare team can also assist with identifying services appropriate to your circumstances.

Can carers and family members access support?

Yes. A range of Australian services provide information and assistance for carers and families.

These may include Carer Gateway, community health organisations, counselling services and other support programs.

Eligibility and availability depend on individual circumstances.

Does National MSA Research provide financial assistance or medical treatment?

National MSA Research does not currently operate a general financial assistance program or provide medical treatment directly.

Our primary focus is raising awareness and supporting research into Multiple System Atrophy.

We encourage people seeking financial, disability, aged care or medical support to explore the appropriate Australian government and healthcare services.

Where can I find educational materials about MSA?

Our Understanding MSA section provides introductory information about the condition.

Our Resource Library is intended to bring together approved educational resources, brochures, printable guides and other helpful materials.

Additional resources will be made available as they are reviewed and approved for publication.

What is National MSA Research’s mission?

National MSA Research is committed to raising awareness of Multiple System Atrophy and supporting scientific research into this rare neurological condition.

Our long-term goal is to contribute towards improved understanding, earlier diagnosis, better treatments and ultimately finding a cure.

How does National MSA Research support research?

Our organisation raises funds, builds awareness and encourages collaboration with researchers, clinicians and other organisations involved in MSA research.

Specific research projects, partnerships and funding activities are subject to organisational review, approval and available resources.

Information about approved initiatives will be shared through our Research section.

Can people living with MSA participate in research?

Some research organisations and healthcare institutions conduct studies involving people living with MSA.

Participation opportunities depend on the particular study, its eligibility criteria, location and ethical approvals.

National MSA Research may share information about relevant opportunities when appropriate.

We do not guarantee placement in research studies or clinical trials.

Anyone considering research participation should discuss the opportunity with the relevant research team and their healthcare professionals.

Can researchers collaborate with National MSA Research?

We welcome appropriate enquiries from researchers, healthcare professionals and institutions interested in advancing Multiple System Atrophy research.

Potential collaborations and funding enquiries are considered according to our charitable objectives, governance requirements and available resources.

Researchers can contact our team with information about their proposed project or area of interest.