Helpful Organisations
Connecting people affected by Multiple System Atrophy with information, support and community resources.
Living with Multiple System Atrophy (MSA) can bring many questions and challenges for individuals, families and carers.
Finding trustworthy information and connecting with organisations that understand neurological and rare diseases can be an important part of navigating life with MSA.
At National MSA Research, we believe that collaboration, shared knowledge and community connection are essential.
We’ve brought together a selection of Australian and international organisations that may provide useful information, education, support or research updates.
Australian Organisations
Multiple System Atrophy Australia (MSAA)
Multiple System Atrophy Australia is an Australian not-for-profit organisation focused on supporting people living with MSA, their families, carers and healthcare professionals.
Its activities include education, awareness, community connection and practical support.
The organisation aims to help people affected by MSA feel informed, supported and less isolated.
Fight Parkinson’s
Fight Parkinson’s provides information, education and support for people living with Parkinson’s and atypical Parkinsonian conditions, including Multiple System Atrophy.
Its services and resources may assist people affected by MSA and their carers with understanding the condition, accessing support and connecting with others.
The organisation also offers information about atypical Parkinsonism and relevant peer support opportunities.
Parkinson’s Australia
Parkinson’s Australia is a national organisation involved in education, advocacy and awareness relating to Parkinson’s and related neurological conditions.
Its information resources include material about atypical Parkinsonian conditions such as Multiple System Atrophy.
Although Parkinson’s disease and MSA are different conditions, some resources relating to movement disorders and care planning may be relevant.
Rare Voices Australia
Rare Voices Australia is the national peak body representing Australians living with rare diseases.
The organisation works to improve awareness, policy, advocacy and access to appropriate support for people affected by rare conditions.
Its RARE Portal provides Australian-focused information, resources and guidance that may be useful to individuals, families, carers and healthcare professionals.
Brain Foundation
The Brain Foundation is an Australian organisation supporting awareness, education and research relating to neurological conditions and disorders of the brain.
Its website provides information about various neurological conditions, including Multiple System Atrophy.
These resources may be helpful for understanding neurological health and identifying further information.
International MSA Organisations
Multiple System Atrophy affects people and families around the world.
International organisations play an important role in increasing awareness, sharing educational resources and supporting research efforts.
MSA United Research Consortium
The MSA United Research Consortium brings together organisations and supporters working internationally to improve awareness, education, patient support and research into Multiple System Atrophy.
Its activities focus on international collaboration, research advancement and strengthening connections across the global MSA community.
National MSA Research participates in this international network, helping strengthen the connection between Australian efforts and the wider MSA community.
Multiple System Atrophy Trust — United Kingdom
The Multiple System Atrophy Trust is a UK charity dedicated to supporting people affected by MSA.
It provides educational information, patient and carer resources, specialist support services and information about living with the condition.
Some services are specifically intended for people living in the United Kingdom, but its publicly available educational resources may also be useful to international visitors.
Defeat MSA Alliance — United States
Defeat MSA Alliance is a United States-based charitable organisation focused on improving awareness, education, research and support relating to Multiple System Atrophy.
Its work includes educational resources, research-related information, community awareness initiatives and international collaboration.
Some programs and support services are specific to the United States.
Finding the Right Support
Different organisations offer different types of assistance.
Some focus on medical information and education, while others provide community support, rare disease advocacy, practical resources or research updates.
When exploring support options, consider what type of assistance you need and whether the organisation provides services to people living in Australia.
Your GP, neurologist or other treating healthcare professional may also be able to recommend appropriate services for your circumstances.
Australian Support Services
In addition to the organisations listed here, Australians affected by MSA may be eligible for assistance through government and community services.
Our Australian Support Services section provides information about healthcare, disability support, aged care, carer assistance, financial support and emotional wellbeing.
Research & Global Collaboration
Research into Multiple System Atrophy is taking place internationally.
Collaboration between researchers, clinicians, charitable organisations and people affected by MSA can help strengthen understanding of this complex condition.
National MSA Research is committed to supporting research and encouraging cooperation that contributes towards improved diagnosis, treatments and, ultimately, a cure.
We encourage visitors interested in scientific developments to explore our Research section.
Important Information
The organisations listed on this page operate independently unless a formal relationship is specifically identified.
Inclusion does not necessarily indicate a partnership, endorsement or affiliation with National MSA Research.
External organisations are responsible for their own information, services and privacy practices.
Services, eligibility requirements and available resources may change.
Information provided by these organisations should not replace personalised advice from qualified healthcare professionals.
Contact National MSA Research
If you have a suggestion for an organisation or resource that may be helpful to the MSA community, we’d welcome hearing from you.
National MSA Research
Email: info@nationalmsaresearch.org.au
Together, we can strengthen connections, share knowledge and help people affected by MSA find the information and support they need.