Our Mission
Combatting MSA Together
At National MSA Research, our mission is to raise awareness of Multiple System Atrophy (MSA), advance understanding of this rare neurological condition and support scientific research towards better diagnosis, more effective treatments and ultimately a cure.
We believe that people living with MSA, their families and carers deserve greater awareness, better information and hope for the future.
Through community support, fundraising, education and research collaboration, we are working to make Multiple System Atrophy better understood across Australia and beyond.
Our Vision
A future without Multiple System Atrophy.
We envision a world where MSA can be recognised earlier, diagnosed accurately and treated effectively.
Our ultimate hope is that scientific research will lead to treatments capable of stopping the progression of MSA and, one day, a cure.
Until that future becomes a reality, we remain committed to raising awareness, encouraging research and strengthening understanding of the challenges faced by people affected by MSA.
Our Core Objectives
1. Raising Awareness
Multiple System Atrophy is a rare condition that remains relatively unfamiliar to many people.
Increasing awareness is essential to helping the wider community recognise the challenges faced by individuals and families affected by MSA.
Through educational initiatives, community events, fundraising activities and public communications, we aim to improve understanding of the condition and encourage meaningful conversations about its impact.
2. Supporting Scientific Research
Scientific research is at the heart of our charitable purpose.
We aim to raise funds and develop opportunities to support research into the underlying causes of MSA, improved diagnostic approaches and potential treatments.
By encouraging appropriate scientific investigation and collaboration, we hope to contribute towards meaningful advances in medical knowledge.
Research funding commitments and projects are subject to appropriate governance, assessment and approval.
3. Improving Medical Understanding
MSA can be challenging to recognise and diagnose, particularly in its early stages.
We believe that greater understanding among healthcare professionals is important to improving awareness of the condition and the needs of people living with it.
We aim to encourage appropriate educational initiatives and the sharing of reliable medical and scientific information.
4. Encouraging Collaboration
Progress in researching a rare neurological condition requires cooperation.
National MSA Research values opportunities to connect researchers, clinicians, institutions, charities and communities working towards common goals.
We recognise the importance of Australian and international collaboration in advancing understanding of MSA and encouraging research opportunities.
5. Supporting the MSA Community Through Information
Behind every diagnosis is a person, a family and a community.
We recognise the practical and emotional challenges associated with living with MSA and caring for someone affected by the condition.
Through educational resources, awareness activities and information about appropriate support organisations, we aim to help people feel better informed and connected.
National MSA Research is not a medical treatment provider, and we encourage people seeking individual medical advice or assistance to contact qualified healthcare professionals and relevant support services.
Our Values
Compassion
We recognise the experiences of individuals and families affected by Multiple System Atrophy and approach our work with empathy, respect and understanding.
Integrity
We are committed to responsible governance, ethical conduct and the appropriate management of charitable resources.
Collaboration
We believe progress is strengthened by working with others who share our commitment to research, awareness and improving outcomes.
Transparency
We recognise the importance of accountability to our donors, volunteers, supporters and the wider community.
Determination
Multiple System Atrophy presents difficult challenges, but we remain committed to pursuing our mission and encouraging continued scientific progress.
Driven by Community
National MSA Research is a volunteer-run Australian charity.
Our activities are supported by people who generously contribute their time, expertise, resources and financial support.
From fundraising events and community awareness activities to sponsorships and donations, every contribution helps us pursue our charitable objectives.
We believe that meaningful change is made possible when people come together around a shared purpose.
Our Commitment to the Future
We recognise that scientific discoveries take time and that progress towards a cure cannot be guaranteed.
Our commitment is to continue building awareness, supporting responsible research opportunities and encouraging collaboration as our organisation grows.
We want National MSA Research to contribute meaningfully to the ongoing effort to improve understanding of Multiple System Atrophy and advance the search for better treatments.
Join Us in Our Mission
There are many ways to support National MSA Research.
Whether through volunteering, fundraising, donating, sponsoring an activity, sharing awareness or contributing professional expertise, your support can help us pursue our mission.
Together, we can strengthen awareness, encourage scientific discovery and keep the needs of people affected by MSA at the centre of our work.
Combatting MSA Together — Towards a Future Without Multiple System Atrophy.
National MSA Research
Rare Neurological Disease Research Ltd
ABN: 55 681 229 032
Email: info@nationalmsaresearch.org.au
Website: www.nationalmsaresearch.org.au