Annual Reports
Transparency, Accountability and Our Commitment to Combatting Multiple System Atrophy.
At National MSA Research, we believe transparency and accountability are essential to building trust with our community.
As an Australian registered charity, we recognise the importance of responsible governance, appropriate financial management and clear communication about our activities.
Our annual reports will provide an opportunity to reflect on our achievements, share information about our charitable work and communicate our progress towards our mission.
Our Commitment to Transparency
National MSA Research was established in October 2024 with a commitment to raising awareness of Multiple System Atrophy (MSA) and supporting scientific research into improved diagnosis, more effective treatments and ultimately a cure.
We recognise that the generosity of donors, volunteers, sponsors and community supporters makes our work possible.
We are committed to managing charitable resources responsibly and providing accurate information about our activities.
Our Annual Reports
This section will provide access to National MSA Research’s approved annual reports as they become available.
Reports may include information about the organisation’s activities, fundraising initiatives, community engagement, governance and financial performance.
Annual reports will be published here once they have been finalised and approved for public release.
What Our Reports Will Cover
Our reporting aims to provide an accessible overview of the organisation’s work.
Our Activities and Achievements
A summary of significant activities undertaken during the reporting period, including fundraising events, awareness campaigns, community initiatives and other charitable work.
Research Activities
Information about approved research collaborations, research funding commitments and supported projects, where applicable.
Research outcomes will be reported only when appropriate information has been verified and authorised.
Financial Overview
An overview of relevant financial information, including charitable income, expenditure and the management of funds.
Financial information will reflect approved organisational records and any applicable reporting requirements.
Governance and Leadership
Information about the Board of Directors, organisational governance and significant developments relevant to the charity.
Community and Volunteer Contributions
Recognition of the individuals, volunteers, supporters and organisations whose contributions have helped National MSA Research pursue its mission.
Looking Ahead
An overview of future priorities and the organisation’s plans for continued development.
Accessing Our Annual Reports
Approved reports will be made available as downloadable documents.
Where possible, we aim to provide reports in accessible formats that can be viewed on computers, tablets and mobile devices.
Previous reports will remain available where appropriate, allowing visitors to review the organisation’s progress over time.
Australian Charities and Not-for-profits Commission
National MSA Research operates through Rare Neurological Disease Research Ltd, an Australian registered charity.
The Australian Charities and Not-for-profits Commission (ACNC) maintains a public register containing information about registered charities.
Visitors may consult the ACNC Charity Register for publicly available organisational information and lodged reporting documents.
Annual Information Statements, financial reports and organisational annual reports are different documents and may have different publication and reporting requirements.
Responsible Financial Management
National MSA Research recognises the importance of managing charitable funds appropriately.
We aim to maintain suitable financial records and ensure that fundraising income, donations, operational expenditure and approved research funding are accounted for accurately.
Where information about research funding is published, we will distinguish between funds raised, funds committed and funds paid to research recipients.
Supporting Our Mission
Annual reporting is one way of demonstrating our commitment to the people and communities who support National MSA Research.
Our mission remains focused on increasing awareness, encouraging appropriate research opportunities and contributing towards a future without Multiple System Atrophy.
We are grateful to everyone who helps make our work possible.
Annual Report Enquiries
For general enquiries about National MSA Research’s annual reporting or publicly available organisational information, please contact:
National MSA Research
Rare Neurological Disease Research Ltd
ABN: 55 681 229 032
Email: info@nationalmsaresearch.org.au
Website: www.nationalmsaresearch.org.au
Combatting MSA Together — With Transparency, Integrity and Community Support.